In 2013, a six-year-old epilepsy patient named Charlotte Figi was featured in a CNN documentary about medical marijuana following a dramatic improvement in her condition after she began ingesting a low-THC strain of marijuana named “Charlotte’s Web.” Figi’s parents turned to medical marijuana (in the form of cannabis oil) as a last resort to treat their daughter’s seizure disorder, which was causing about 300 grand mal seizures per week. Figi’s seizures were reduced from 1,200 a month to just three in eight months following the beginning of her treatment. Now, the head of Epilepsy Foundation is urging for nationwide availability of the strain, saying that parents of sick children shouldn’t be forced to move to Colorado to treat their children.
“There is enough evidence to suggest we should really try and study this,” said father Warren Lammert.
His daughter, Sylvie, had her first seizure at 9 months old.
“She had an implanted medical device, she’s tried the ketogenic diet but we haven’t found anything that will control her seizures,” said Lammert.
Sylvie is now 16 and despite numerous treatments still lives with daily seizures.
“She’s delayed and she’s in a special school,” said Lammert.
Lammert is chairman of the board of the Epilepsy Foundation and has enrolled Sylvie in a clinical trial of CBD at New York University.
“I feel blessed to at least have the hope of this new therapy and I feel other fathers other mothers, other families should have that hope and have that option,” said Lammert.